Hello Stevie Fever Peeps,
This is what our Christmas looked like a few years ago (pics below). I look back to that time now and wonder how we all got through it. But it was the new normal and as you all know, when faced with incredibly hard times, there’s no other way to get through it than to just, well, go through it. Cory filling Steve’s feeding tube. Steve observing the room quietly. The ever-looming idea that the next phase of all of this would mean Steve wouldn’t be there at all.
Grief is not a straight line—there is no time limit or end point. It never leaves you. Sure, it’s ever-changing in how it shows up and when, but memories can pop up and break your heart, or they can gently remind you that you were lucky to have loved that person.
As many of you know, the grief that comes with ALS is profoundly daunting. The rapid and unrelenting decline of someone facing ALS leaves families not just heartbroken, but often feeling helpless, as there’s no fight to win. For so many, including our family, the journey with ALS and its community was incredibly brief. This is not unique to us. So it’s understandable to note that many families move on after the loss of their loved one, and they don’t want to think about ALS. What’s the point? There’s no cure. It’s so rare, only 2 out of 100,000 people are diagnosed in Canada per year. What impact could we make?
But here’s the thing I’ve learned: whether you’ve impacted millions of people or only two, you’re doing something. And something is a hell of a lot more than nothing. So consider us little impactors. The Stevie Fever Impactors! We have raised over $200,000 for ALS research, we honour Steve with a dance party every year, raising awareness and bringing moments of joy to families navigating their new normal right now.
And you, my friend, help us do that. Thank you :)
If you know of anyone in Canada facing ALS and you’d like to nominate them to receive a holiday grant, please click link and/or see information below.
As well, we are in the planning stages of the Stevie Fever Dance Party 2025, so please take a moment to give us your feedback and thoughts on our next event. We want to hear from you! https://forms.gle/8co3LFTpSYsACCGTA
Thank you, Stevie Community.
Trish
647-297-9058
Bring Joy to a Family Facing ALS This Holiday Season
The holidays are a time for love, togetherness, and hope—but for families affected by ALS, it can also be a challenging season. At the Stevie Fever for ALS Foundation, we’re dedicated to making this time a little brighter. This Christmas, we’re looking to help a Canadian family touched by ALS create special moments and lasting memories.
How Can We Help?Do you know a family facing ALS that could use a spark of joy this holiday season? Or perhaps you are part of a family affected by ALS and could use some extra support? Whether it’s a festive dinner, an outing to bring smiles, or a gift that brings loved ones closer together, we want to make this season magical.
How It Works:
Who Can Apply?
Applicants must reside in Canada.
If you’re not the person living with ALS, you can nominate a family you know that is affected by this disease.
What’s Required?
Fill out a simple application form [insert link or instructions].
Provide documentation of an ALS diagnosis to confirm eligibility.
Tell us what kind of joy you’re seeking this holiday season—how can we help bring your vision to life?
Let’s Make This Christmas SpecialALS can cast long shadows, but together, we can bring light and hope. We want to know: How can we help a family spend more time together? What would bring joy during this season?
Deadline to Apply: December 19th, 2024
Submit your application or nominate a family today!
Together, let’s make this holiday season one to remember. A little bit of joy can go a long way in making the tough days a little brighter.
With gratitude,
The Stevie Fever for ALS Foundation Team
Help Us Make Stevie Fever Even Better!
Thank you for joining us at the Stevie Fever Dance Party over the past few years! Your support has been vital in honouring Steve’s memory, celebrating those we’ve lost to ALS, and raising funds to support families facing this challenging disease.
As we plan for Stevie Fever 2025, we’d love your input to make this event even more memorable and impactful.
Tell us what you think!
How did you feel about the venue?
Was the ticket price reasonable?
Did you enjoy the theme?
What’s your preference for entertainment: more live bands or more DJ sets?
How can we make Stevie Fever more engaging while keeping its heart—honouring Steve and those touched by ALS?
Your feedback will help us create a night that not only raises vital funds but also keeps Steve’s spirit alive in a meaningful way.
Take the Survey Now https://forms.gle/G75zE2Zg5J3NNYaZ8
Thank you for being part of this incredible community. Together, we can make 2025 the best Stevie Fever Dance Party yet!
With gratitude,The Stevie Fever for ALS Foundation Team
Steve's last Christmas
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